Keep Newborn DNA Away from the Government c/o Patient Privacy Rights
- Fails to recommend informed written consent requirements for the storage and use of newborn DNA for research and other purposes.
- Asserts a public claim on the DNA of newborn citizens.
- Claims that newborn blood is necessary for "population surveillance."
- Disregards the 22 state genetic privacy laws and the 5 state genetic ownership laws.
- Omits compelling statistics from the University of Michigan study that found the public appalled by unconsented government storage and research (p. 12).
- Recommends parent education instead of informed parent consent requirements that would enforce such education.
- Claims that state screening programs are charged with "stewardship" of newborn DNA samples-'ensuring appropriate use'-when they are actually charged with simply testing each newborn.
- Fails to acknowledge the constitutional Fourth Amendment genetic privacy and property rights of individuals.